3232 Railroad Ave
Wantagh, NY 11793
5:00 p.m. Saturday, Sept. 28, 2013
Fundraiser for Samantha & Jake Lazazzaro, Saturday, September 28th from 5pm-9pm at Mulcahy's in Wantagh, 3232 Railroad Ave.
Tickets $70 per person includes open bar, food and door prize raffle ticket.
Samantha and Jake were both born with a rare terminal illness. Cockayne Syndrome is a neurodegenerative disease with a life expectancy of only 4-7 years old. Both Sam and Jake have has numerous eye surgeries starting when they were only 4 weeks old. In 2008, we found an alternative medical treatment out of the country that has changed their lives dramatically! After 3 treatments, Samantha regained her ability to walk at the age of 7, a milestone that she lost at 3 1/2 years old. Jake is able to talk in full sentences and loves to sing and dance. ALthough they both have feeding tubes to help them get proper nutrition and see many doctors, specialists and therapists, they enjoy their lives, going to the park, library, swimming, playing with their cousins and their dog Coco and car Willow.
Thanks to the support of wonderful family, great friends and generous strangers, we have been able to continue getting Sam and Jake the treatment they need. Samantha and Jake are fighting and beating Cockayne Syndrome! Samantha will turn 11 in August and her brother Jake will be 8 in October! They are defying the odds, getting stronger everyday!
Please come out for a great night with great friends and family for a wonderful cause - giving Samantha and Jake the quality of life that they so deserve!
You can pay at the door or mail your donation beforehand. If you are not able to attend but would still like to help, you can mail a check or make a donation through PayPal on our website: www.samandjake.org, email: email@example.com. Mail donations to: Samanatha and Jake Lazazzaro, 188 Southern Blvd, Hauppauge, NY 11788.