370 New York Ave
Huntington, NY 11743
6:00 p.m. Thursday, Feb. 27, 2014
We are saving Grace and we are reaching out for your help!!Please join us for a wonderful evening at the Paramount in Huntington on Thursday, February 27th from 6-9pm. GRACE has a rare, genetic disease called Sanfilippo Syndrome. Sanfilippo Syndrome is also referred to as MPSIII and is a type of "storage"disease. Grace is missing a crucial enzyme that would normally break down, and dispose of cellular material in her body. Because of her inability to dispose of this material, the build-up causes progressive and degenerative damage.Grace inspired a now patented learning system called The SmartGAME Method. Grace's games are now being used in schools as community programs around the country instilling early wellness habits and bringing students, parents, teachers and community merchants together in support of fun, healthy action! Children are learning to place the care of themselves, others, and their environment first and foremost in their lives. This is how we create a better future, one child, one action at a time.Grace's game is a game changer! With Grace as our mascot, our goal is to use her "celebrity" status and far reach across the US to help fund a clinical trial for a drug that will save her life. Please attend our fundraising event at the Paramount in Huntington, NY on Thursday, Feb, 27th 2014 from 6-9 pm.Grace will be there for a "meet and greet!"